Section: Module 1: Lesson 2: Autonomy, Consent, Confidentiality and the Role of the FamilyFile | Medical Ethics Online | NextGenU.org
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Student Learning Outcomes:
Upon completion of this lesson, you will be able to:- Describe ethical principles that underlie patient autonomy.
- Explain the consent process in the context of shared decision-making and the role of family.
- Outline the ethical principles relating to patient confidentiality.
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Required Learning Resources and Activities
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Read Part B: Basic Ethical Principles, Section 1 (Respect for Persons) in its entirety, then read Part C: Applications, Section 1 (Informed Consent) including all three subsections (Information, Comprehension, and Voluntariness). (19 minutes)
U. S. Department of Health and Human Services - Originally published 1979 and last reviewed 2025
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Read the following sections: "Respect for Patient Autonomy," "Informed Consent Prior to Treatment," "Treatment Refusal (by Both Patient and Physician)," and the "Four models of the physician-patient relationship" subsection under "Beneficence." (14 minutes)
National Library of Medicine - 2024
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Watch the entire video. (19 minutes)
Chanel AHRQ Patient Safety - 2024
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Read "Methodological Proposal" (Steps 1-3 with legal considerations), "Case vignettes" (both cases), and "Gap #3: Informed consent process for vulnerable populations." (25 minutes)
Science Direct - 2025
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Read Introduction (through "Definition of PHI"), "Patient Rights under HIPAA", "HIPAA and Communication With Patients", and "Pearls" sections. (20 minutes)
General Medical Council
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Watch the entire video. (9 minutes)
Chanel Lecturio Medical - 2023
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Read: Introduction, "Where is the HIPAA Privacy Rule Applicable?", "Patient Rights under HIPAA", "Contents and Authorizations", "HIPAA and Communication With Patients", "When can PHI be disclosed without consent?", and "Inadvertent Disclosure". (15 minutes)
National Library of Medicine - 2023
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General Instructions: In this activity, you will demonstrate your understanding of the fundamental ethical and legal duties of healthcare professionals through critical analysis and application to a clinical scenario involving patient rights, autonomy, consent, confidentiality, and family involvement in decision-making.
Step 1: Review Lesson Summary
Review Module 1 Lesson Summary to prepare for this activity, focusing on:
"Primary Ethical Obligations in Clinical Practice" – the four foundational principles (beneficence, non-maleficence, respect for autonomy, justice) and core professional obligations
"Patient Rights and Their Relevance to Clinical Practice" – core patient rights and healthcare professional duties
"Autonomy: The Foundation of Patient-Centered Care" – understanding patient autonomy, decision-making capacity, and cultural considerations
"Informed Consent: Process, Principles, and Practice" – elements of valid informed consent and shared decision-making
"Confidentiality: Protecting Patient Privacy and Trust" – ethical basis, scope, and when confidentiality may be breached
"The Role of Family in Clinical Decision-Making" – appropriate family involvement and surrogate decision-making
Step 2: Critical Analysis and Response
Read the following clinical scenario:
A 68-year-old patient with heart failure is admitted to the hospital. The physician recommends a cardiac catheterization to evaluate coronary artery disease. When the physician begins discussing the procedure and its risks with the patient, the patient's adult daughter interrupts: "Don't tell him about the risks—he'll refuse. We've discussed this as a family and he needs this done." The patient remains silent. Later, when alone with a nurse, the patient asks, "Do I really need this test? What if I say no?" The daughter subsequently provides a handwritten, undated note stating the patient wants his children to make all medical decisions. The medical record contains no formal advance directive or power of attorney. The patient has had variable confusion but also lucid conversations with staff.
Based on your readings from the Module 1 Lesson Summary, compose a 700-900 word response addressing the following:
1. Primary Ethical Obligations and Patient Rights (250-300 words)
Give an account of the primary ethical obligations associated with good clinical practice (beneficence, non-maleficence, respect for autonomy, justice) and apply them to this scenario
Explain the concept of patient rights and its relevance to the duties of a doctor in this case, including the right to information, right to autonomy, and right to participate in decision-making
Analyze how the physician's professional obligations are challenged when family wishes conflict with standard consent practices
2. Autonomy, Consent, and the Role of Family (300-350 words)
Describe the ethical principles that underlie patient autonomy and assess whether the patient's autonomy is being respected in this scenario
Explain the consent process in the context of shared decision-making, including the essential elements of valid informed consent (disclosure, understanding, voluntariness, capacity, documentation)
Discuss the appropriate role of family in clinical decision-making when the patient has capacity (consultative vs. decisional authority)
Evaluate whether the handwritten note constitutes valid delegation of decision-making authority and what formal documentation would be required for the family to have legal decision-making power
Propose how the physician should proceed with the consent process
3. Confidentiality Principles (150-200 words)
Outline the ethical principles relating to patient confidentiality and their ethical foundations
Identify the confidentiality issues in this scenario, particularly regarding the family's request to receive information before the patient and to withhold risk information
Explain when and how patient information can be shared with family members, and the limits of family access when the patient has decision-making capacity
Your response should demonstrate ethical reasoning, integration of principles from the Lesson Summary, and practical application to guide clinical decision-making.
Step 3: Submit
Submit your response through the course platform. Prepare your work as a Google Document or Word document, then upload or paste your complete response into the assignment submission area. Make sure to reference others' intellectual property when necessary. All references should follow 7th Edition APA formatting. For further instructions, see the resource on the Himmelfarb Health Sciences Library: APA citation resource (N.B.: references are excluded from word counts).
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Quiz: Module 1
To access the quiz, click on the name of the quiz provided above. On the following screen, click the attempt quiz button to view the case studies and respond to the questions.
TO PASS THIS QUIZ YOU MUST OBTAIN A SCORE OF 80%.
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Recommended Additional Readings
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(38 minutes)
Government of Canada- Panel on Research Ethics - 2022
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(1 hour 24 minutes)
Stanford Encyclopedia of Philosophy - Originally published 2011 and last reviewed 2025