Section: Module 3: Lesson 2: Issues around the Beginning and End of Life, including DNR | Medical Ethics Online | NextGenU.org
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Student Learning Outcomes:
Upon completion of this lesson, you will be able to:- Identify ethical dilemmas in the context of beginning and end-of-life care.
- Explain primary ethical concepts associated with beginning and end-of-life care and their relationship with the law.
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Required Learning Resources and Activities
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Read the entire content. (31 minutes)
The Center for Bioethics and Human Dignity - 2001
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Read Introduction, "Emotional difficulties in end of life decision making," "Neonates, children and young people" (paragraphs 90-108), "Meeting patients' nutrition and hydration needs" (paragraphs 109-127), "Cardiopulmonary resuscitation" (paragraphs 128-145), and "Resolving disagreements" sections. (50 minutes)
General Medical Council
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Read Introduction, "Universal ethical principles," "Decision-making during end-of-life care" (all six categories), and "Ethical decision-making in different healthcare settings" sections. (30 minutes)
National Library of Medicine - 2021
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Read the entire content. (33 minutes)
AMA Code of Medical Ethics
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Read the entire content. (13 minutes)
ScienceDirect - 2010
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General Instructions: In this activity, you will demonstrate your understanding of ethical and legal issues at the beginning and end of life through analysis of advance directives, refusal of care, DNR decisions, and the relationship between ethical principles and legal frameworks in end-of-life care.
Step 1: Review Lesson Summary
Review Module 3 Lesson Summary to prepare for this activity, focusing on:
"Foundational Ethical Principles in Medical Decision-Making" – the four principles (autonomy, beneficence, non-maleficence, justice) and balancing competing principles
"End-of-Life Care: Ethical Framework and Decision-Making" – patient autonomy and advance care planning, types of advance directives, and the Patient Self-Determination Act
"Surrogate Decision-Making: Standards and Approaches" – substituted judgment standard and best interests standard
"Treatment Decisions: Withholding vs. Withdrawing Care" – ordinary vs. extraordinary means and do-not-resuscitate (DNR) orders
"Defining Death: Brain Death and Its Implications" – the Uniform Determination of Death Act and clinical implications
Step 2: Critical Analysis and Response
Read the following clinical scenario:
An 82-year-old patient with advanced metastatic cancer has been admitted to the hospital with pneumonia and respiratory failure. Three years ago, she completed an advance directive clearly stating she did not want mechanical ventilation, CPR, or life-prolonging treatments. She also designated her son as her healthcare proxy. Her condition has now deteriorated rapidly, and she has become unresponsive. The medical team recommends a DNR order and comfort-focused care consistent with her advance directive. However, her two daughters have arrived from overseas and are demanding "everything be done," including intubation and ICU transfer. They state: "She made that advance directive years ago when she wasn't this sick. She wouldn't want to give up now." The son, as healthcare proxy, supports following the advance directive. The daughters threaten legal action if aggressive treatment is not provided.
Based on your readings from the Module 3 Lesson Summary, compose a 700-900 word response addressing the following:
1. Advance Directives and the Right to Refuse Care (250-300 words)
Explain the role of advance directives in clinical practice and how they are used to guide care when patients lose decision-making capacity
Describe the different types of advance directives (living wills, durable power of attorney for healthcare/healthcare proxy, physician orders) and their legal standing
Discuss the ethical and legal basis of the right to refuse care, including the principles of autonomy, bodily integrity, and self-determination
Apply these concepts to the scenario: analyze whether the patient's advance directive should be followed despite the daughters' objections, and explain the legal authority of the healthcare proxy versus other family members
Address how healthcare providers should respond when family members claim the patient "would have changed their mind"
2. Ethical Dilemmas and Primary Ethical Concepts in End-of-Life Care (250-300 words)
Identify the key ethical dilemmas present in this scenario, including conflicts between respecting advance directives and family wishes, disagreement among family members, and balancing autonomy with family concerns
Explain the primary ethical concepts involved in end-of-life care: autonomy (the patient's right to make decisions), dignity (preserving the patient's values and wishes), proportionality of care (balancing benefits and burdens of treatment), quality of life, and medical futility
Discuss the ethical significance of DNR orders, including what DNR means, what treatments are withheld under DNR, and how DNR orders relate to advance directives
Analyze how the concept of substituted judgment applies in this case (what the patient would have wanted) versus best interests (what others believe is best for the patient)
3. Relationship Between Ethics and Law in End-of-Life Decision-Making (150-200 words)
Explain how ethical principles interact with legal obligations in end-of-life decision-making, including the legal authority of advance directives and legal protections for clinicians who honor them
Discuss the legal risks of overriding a valid advance directive versus honoring it despite family opposition
Critically evaluate how the medical team should respond to the daughters' threat of legal action, including what legal and ethical safeguards support following the advance directive
Propose a practical approach for resolving this conflict that respects the patient's autonomy, addresses the family's concerns, and fulfills the medical team's ethical and legal obligations
Your response should demonstrate understanding of advance care planning, ethical reasoning about end-of-life decisions, and the legal framework governing refusal of treatment and advance directives based on the Module 3 Lesson Summary.
Step 3: Submit
Submit your response through the course platform. Prepare your work as a Google Document or Word document, then upload or paste your complete response into the assignment submission area. Make sure to reference others' intellectual property when necessary. All references should follow 7th Edition APA formatting. For further instructions, see the resource on the Himmelfarb Health Sciences Library: APA citation resource (N.B.: references are excluded from word counts).
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Quiz: Module 3
To access the quiz, click on the name of the quiz provided above. On the following screen, click the attempt quiz button to view the case studies and respond to the questions.
TO PASS THIS QUIZ YOU MUST OBTAIN A SCORE OF 80%.
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Recommended Additional Readings
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(4 minutes)
PCC4U Palliative Care Curriculum for Undergraduates
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(1 hour 33 minutes)
Stanford Encyclopedia of Philosophy - Published 2007 Reviewed 2021
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